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An independent journalistic platform for insights, conversations and solutions to building healthier societies.
Many people living with rare diseases wait years to receive an accurate diagnosis. Most conditions lack approved treatments, and the emotional toll on families is severe.
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With more than 7,000 rare diseases affecting 300 million people globally, it is time to make rare diseases a global health priority.
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This special report hears directly from people living with rare diseases and explores exciting developments that improve diagnosis and treatment pathways.
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